pancreatic adenocarcinoma

Zoo Day

I am a month and 24 to 40 hours out from my surgery and the pain is becoming more bearable. I will stand firm on my soapbox that a wedge resection is alot more painful than a bi-lateral lung transplant with a clam shell incision. As my energy increases and pain decreases I need to do what I can to stress my lungs and my entire respiratory system.....so the girls R2 and I went to the zoo. I got alot of walking in, I wish I had our Radio Flyer (wagon) so the girls could pull me, that zoo kicked my but. I am SO glad we got there after school with only an hour and fifteen minutes left before the zoo closed.

return to work

I am returning to work today. I will be telecommuting; there are some people at work that might be a little under the weather. It will be good to start to work my way back into a normal routine I am experiencing at TV burnout (ESPN, CNN, HG, MSNBC....)

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Shopping

What the heck, I can't just sit back and recover. I am shoe shopping for a pair of Easter shoes for Ravyn. Could I not have been told about the need for Easter shoes earlier so I didn't have to work so hard swimming up stream against the mall traffic, I can't move the crowd like I used to I am not such an imposing figure like I once was BEFORE... BTW I had no luck finding the shoes one mall down and 12 stores under my belt.

As I am a respiratory patient I can't garden or manicure my yard anymore, my wife is now taking an interest in the yard (landscaping) and planting flowers. She is taking over my domain and I can't find an appropriate N95 mask to keep my lungs free of the fungus and bacteria that lye within the dirt.

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Easter / Soccer Photos

Easter 2009 Raegan and Ravyn (before I / Rhonda found matching shoes for Ravyn so she could look like Ravyn)

Soccer with Ravyn "the Rock"

Tired Tuesday

Saturday: Ravyn did not do so well this past Saturday on the soccer field, I am going to call her the Rock because if the coach puts her in position she is not going to move, at least she isn't chasing butterfly's.

On Saturday eve I tired running at the TCU track, it was an ugly sight I did win EVERY race though. (R³ kept challenging me to race after race until they got hungry. I tried to run a Jingle Jangle (sprints that we used to run during football across the field over-n-back over-n-back for time) I got in one ugly jingle. We finished up at the Purple Cow to celebrate the fact that I made it off the track on my own and not in an ambulance.

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NY Times Article

I recently was fortunate enough to lend my voice and story to an electronic article that was produced by the New York Times staff Karen Barrow and others. I hope this article will increase awareness and de-stigmatize this health care crisis (Lung Cancer).

http://well.blogs.nytimes.com/2009/04/22/voices-of-lung-cancer/

http://www.nytimes.com/interactive/2009/04/23/health/healthguide/TE_LUNGCANCER.html

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Doctor Visit

Went and hung out all FREAKING day at the heart / lung clinic but I had a packed lunch, a snack, another snack, my IPOD, puzzle book(s), laptop and Internet access.... I only got bored the last 2 hours while sitting in the waiting room (so I took a nap, that right I was sprawled out on the chairs Al Bundy style snoring and scratching).

The visit was uneventful. My meds are still the same, the decreased prednisone 5mg in the morn. and Double Strength Bactrum on Monday and Thursday now. I finished my annual Lung Transplant evaluation my PFT's are up from my March Spa visit (which is good) I didn't do the 6 minute walk as that was done in March right after I got out of the Spa and it was still more than double what I had done the previous year (I think the headband, the full body suit and the healies helped).