pancreatic adenocarcinoma

They let me sleep (Not really)

It is amazing what 4hours and 26 minutes of sleep will do for you I feel like I have just finished hibernating. The needles have persuaded me to get on up out of the bed, and I also need to reload my IPod so that I can have something to listen to in the ICU (instead of the machines). Finishing up a Sudoku, sending e-mail, and of course paying bills and finalizing some additional tax information (brought some tax law info to read up on..... lots of medical deductions).
Shower time, looks like the operation will access my lungs through my right side and spread the ribs (that hurts your back BTW) and I still anticipate 3 chest tubes. Are scars still fashionable???

Got gummy bears for the girls, and some coloring pictures and homework (math / sitewords) for Raegan to work on when they visit. I guess we will have to do a better job explaining my illness as Raegan is asking more and more questions about why daddy always goes to the hospital.

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Delayed

The surgery has been delayed for a little bit, there was a complication with the surgery before mine. I am hungry, I need food soon. I wonder if the hospital will require me to where a hair net, (i.e I have no hair on my head). 0837 CST

Let try again, attempt number two. 0947 CST

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Cancer Homiee stoped' in on me

A. Marshall came by to see me today, it was good to see her and trade info. about my path to lung transplant and her eventual listing. Thanks for the magazines too.

Uh it's Thursday

Busy Busy Busy day.....

I had to drop yet another class as I was attempting to get my 4^th Masters.... through this whole round of medical stuff SMU Bobby B. Lyle School of Engineering has been very understanding and accommodating throughout all of this. I did have a hard time doing the right thing in this situation (dropping the class) makes me feel like I am quiting.

If dropping the class was not enough I really really feel bad that I let Ravyn down today. As I was getting the girls ready for school this morning I told her that I would come and watch her at dance class today. When I picked her up she reminded me several times that I didn't come to dance class today. I had a scheduling conflict due to the war on adenocarcinoma.blogspot.com/" title="lung cancer">lung cancer, I was being interviewed by the New York Times which will help break the stigma and raise awareness about adenocarcinoma.blogspot.com/" title="lung cancer">lung cancer, but I sure do feel bad about missing dance class (very rarely do I get a chance to go to Ravyn's dance class). I have already promised to attend next weeks class but I already see a conflict there too, I have all day doctors visits in Dallas.

Soccer practice was good Ravyn is becoming more independent and comfortable being in a new environment.

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Dam April fool's

Still sore, still trying to recover but my wife once again played her yearly April Fool's joke. Since she gets up butt early in the morn to commute to Dallas she called me on my cell phone to say she had a blow-out while she knew I was still sleep. I start telling her to call triple A (AAA) then she blurts out April Fool's....... I throw my phone and go to bed....... pay back is comin'.

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ER visit from hell (Father's Day)

Yesterday I felt really bad and tried to tough it out as long as I could but in the end I had to get a ride to the ER. My wife is still out of town that is why it took me so long to go into the ER, I had to find someone to watch the girls for me. I got my sister-in-law to watch the girls and drop (STRESS the word drop off) at the ER at about 10 PM CST. I could not hold any fluids down, eat anything, or even take my meds; on top of all that I was vomiting all day. The visit to the ER close to my house (Southwest Side of Fort Worth, TX) was horrible:

They don't take the precautions that should be taken when handling a transplant patient
Most of the medical professionals I was treated by had never dealt with a lung transplant patient.
They refused to contact the transplant doctor on call at the hospital where all my post transplant care is given.
These doctors (loosely used) basically gave me some IV fluids, some anti-nausea meds, then sent me home (discharged at 214 AM CST) Knowing I had no one at home to watch me, not knowing if I could take my meds, and also with the knowledge that I did not have a ride home. When I told them I had no was home at 214 AM they said I could just sit and wait in the waiting room.

After this experience I hope I NEVER HAVE THE MISFORTUNE of Being TREATED at Harris Methodist Southwest's ER staff ever again.

Can't get the shot, Can't find the shot H1N1???

I seem to be spinning my wheels, wasting my time trying to find the H1N1 shot, and anyone to give it to me. The H1N1 vacine seems to be as illusive as big foot or the Locheness monster. I have asked many if not all the providers that I see and it seems I am getting the party answer, ?if we get it, if we don?t run out, blah blah blah?..?; I am not going to worry about it my H1N1 care will be as it was before when the Type A flu loomed within my household, REACTIVE and 10 times more expensive (time, money, and pain). If I don't get the vacine I will keep staying away from large groups.

UT Southwestern, for instance, requested 157,578 doses. The state shows shipping orders for 12,050 doses. But the hospital has only received 3,500 doses, spokesman John Walls said.

Source: From
http://www.dallasnews.com/sharedcontent/dws/news/localnews/stories/DN-fludoses_10met.ART0.State.Edition1.4b515e9.html

Nov. 10, 2009

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